About Mawatynki
Bart and I met in 2016, after a cancer diagnosis led me to retire from working in care management and training. As we all know, the hours required can be long and sometimes stressful and I realised they were not conducive to recovery and good health.
After treatment I decided to work as a carer for a young lady who had a very rare and complex medical condition. I was to accompany her to Great Ormond Street Hospital three times a week and stay with her for the duration of her kidney dialysis, and any other treatments required, before returning home, ensuring all of her medical and social needs were met throughout the journeys.
That young lady was called Kaychanel (KayC) and Bart was her regular driver.
The days were very often long and arduous, on average 14 hours each, and the treatments she required were relentless; KayC spent a great deal of her life in one hospital or another.
It is almost impossible to find the words to describe KayC, she was completely unique. The kind of person we only meet once in a lifetime, if we’re lucky.
She was bright, beautiful and very brave.
She exuded confidence and could teach most of us a lesson about being happy in our own skin.
She had a wicked sense of humour, adored babies and animals and put the needs of others above her own.
She had a remarkable way of looking at life and was able to find happiness in every moment.
We greatly enjoyed our days with her and miss her wry observations and witty retorts.
She smashed through the limiting milestones which were set for her – not surviving beyond a few months, never reaching five years old, never being a teenager…
One of her greatest joys was being well enough to attend her school prom in 2019 and she shone like the star she was, looking elegant, radiant and beautiful.
Unfortunately, in September of 2021 and at just 18 years of age, KayC succumbed to complications from her illness and passed away.
KayC touched the lives of everyone who met her, whether it was through her kindness, her humour, her laughter, or her bravery in the face of a very complex and unforgiving illness.
KayC always called Bart ‘Tynki’, (another story!), and he called her ‘Mała Tynki’ (pronounced Mawa), meaning Little Tynki.
Our project has been named in her honour and all charitable donations will be made in her memory.
Fly high, Sweetheart. We will never forget you.
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